F - Focused Yet Flexible

                                                        

#AtoZChallenge

One of the things that cancer brings to everyone it has touched is -CHAOS! 

Your thoughts, emotions and relationships, all go through terrible chaotic phases. Bringing back order is not easy, but you can by focusing on one thing at a time. 

Go on prioritizing what your goal is for next month, next week, tomorrow, today, within an hour and ‘NOW’. The ‘now’ will usually require deep breaths and relaxation on priority before deciding what is to be done next. Focus on the immediate goal which will lead you towards a long term goal. Let surviving cancer and staying alive not be the focus or your goal. Let us move away from negative things to more positive things that fill our hearts with joy and enthusiasm. 

Focus is important, but considering you are fighting a tough battle, give yourself some flexibility. If you are too rigid with yourself and your goal when life is being hard on you, it is not fair. Being flexible shouldn’t be mistaken as being lazy, fickle minded, or lenient with the goals. It is about being adaptive to changes. 

For example - During treatment, you may decide to walk a certain distance everyday to regain your fitness level and stamina. But chemotherapy can be harsh and there are days when you feel you cannot do it. Your body gives in and refuses to listen to your focus or goals crap. It is then the time to forgive yourself and be flexible to change the plan for the day. Have faith in yourself to jump back when you can. There is no need to push yourself too hard either emotionally or physically. This is the time to be kind to yourself. 

One of the quotes that inspired me a great deal during my fight with cancer was “Focus on the outcome, not the obstacle”. My focus and goals had no place for the word cancer. They were shifted completely to something more alluring and positive.We get what we focus on- so we have to focus on what we want. Therefore cancer has to go out of focus. 

You may say I want to survive cancer, I want to kick cancer, I want to get rid of cancer or whatever makes you feel like a warrior, you still remain connected to cancer. Your goal and focus will have cancer attached to it. So, I felt I should completely develop a new vocabulary which had no place for the word cancer in it. I had cancer, but there was no reason that cancer should have me as well. I moved away from it….and so have I stayed with my goals and focus not connecting to it. 

I do talk about my fight with cancer, my survival and other things connected to it. This April I also celebrate my 25th year of survival and step into 26th. I cannot completely forget it because it makes sure I am reminded of its presence through the mastectomy. But then, it is not included in the inner sanctum of my mind. That is a place for my real goals and happiness.There I only focus on celebration for life I am living. That is the place where I develop Faith in my life.  Hence, I can be happy and jovial despite going through hard times. 

E - Enthusiasm To Enjoy Life

 

The secret of genius is to carry the spirit of the child into old age, which means never losing your enthusiasm. 

Aldous Huxley

Children overcome cancer easier than adults. My doctor said, “It is because of their enthusiasm to live and be happy”. Whatever you do with half heart is never done perfectly, so how can we expect life to be perfect when we live it half-heartedly, surviving through each day as though it is a burden on us. 

Fighting cancer is tough, but never let it steal your enthusiasm for life. I had lost my enthusiasm for life before cancer woke me up reminding me that “Life is too short to spend in regrets”. I picked myself up with enthusiasm after cancer, and lived life fully. My best memories mostly belong to my post cancer era. 

I learned to enjoy life. Initially I was very conscious about the food I eat, about exercising and many other healthy habits. Somehow, fighting cancer, I learned to enjoy everyday. The side effect of this change was weight gain, but despite being heavy, I was very happy and jovial with my life. 

There have been people who tell  me, “Come on, no one can be happy because they got cancer”. That is the wrong message they get from what I am saying. I was not happy because I got cancer, I learned the value of being enthusiastic and enjoying life despite going through cancer. I learned to value happiness. It slowly started to seep in through my everyday life, in every little activity I did, like you can see in the picture below.  

My enthusiasm encouraged me to take up studies and become a post-graduate, learn to swim, learn computers, learn to drive a scooter and do many things after my encounter with cancer. Today, when I look at the person I was before cancer, sometimes I cannot help myself from thanking the terrible disease for waking me up from the dullness I slipped into unknown to me. 

We all need to learn to live our lives enthusiastically, to feel the effervescence bubbling through our days. We need to look forward to tomorrow. My special needs daughter has a wonderful phrase that makes the world a lot better place to live in. She welcomes the morning with the phrase “Tomorrow has happened”... I just love hearing her say that since it fills me with positiveness.

D - Determination To Change Destiny

Since my children were young, I was determined not to succumb to cancer and leave them behind without a mom. My immediate focus was on taking care of my children and my family. I was determined never to leave them emotionally shattered at a young age. I wanted to live, at least until they were old enough to take care of themselves. I craved for quantity in life, rather than good quality. I was willing to compromise on many things, given that I could get a few years to be with my children. My determination to live longer was very strong and I believe that was one of the factors that has given me this 25 years after cancer. 

As I went through chemotherapy and my body felt its side-effects, my confidence, and determination were shaking, but then all I had to do was to look at my children and dare to dream a life with them. That supplied me with an incredible amount of determination and energy to fight it out, no matter how hard it was. 

Determination to succeed is a great part of the success story. Though determination can be a positive and powerful motivator, it is not easy to feel determined and positive when we are going through cancer, its tormenting treatment and changes in life we have to make all of a sudden. My idea was to shift my goal from surviving cancer to some other goals which I always wanted to achieve. That helped me stay determined to fight it out, a hard to win battle, even in those times when it was physically exhausting.

 

Leaving my immediate fight of staying alive, slowly I focused on living to fulfill my dream of continuing my education, seeing my children grow up, travel outside India and meet people in  a different country, become financially independent completely, and learn to enjoy life keeping aside discipline. I dared to dream big when I was fighting cancer, and this determination to fulfill the dream helped me stay positive, energetic and never to quit. 

. 

I know everyone faces cancer in different stages of life..The situations and relationships are different for everyone. Also, there are a lot more bigger battles than cancer, but nothing can be more fatal than the loss of will to do anything. No matter who you are, what you are going through, your determination to live and succeed will have a great effect on the outcome of the situation. When you feel positive and confident, your brain and body responds in a different way. You get tuned to success. 

If you are facing a tough phase, take a deep breath and get up with gusto to fight it out with a determination to succeed. Success will follow …

C - Calm Despite Cancer

 “Life is ten percent what you experience and ninety percent how you respond to it.” – 

Dorothy M. Neddermeyer

The fear of cancer can be greater than cancer itslef. It is easy fall for anxiety, panic and despair when fighting with cancer for your life. Easier said than done, but remaining calm and keeping your cool is going to help you a lot. 

If you think about the future and the effects cancer would have on you, it can lead to panic and anxiety. Just take one day at a time, breather and acheive the toughest task of keeping calm and being cool as you fight it off with cancer.

Personally for me, I had to be calm because of my two young children. My son was four years and daughter just one. Everytime I lost my cool they would Panic along with me. They picked the vibes and I could see the fear in them that something was not right. I had to train myself not just to pretend to be calm but actually maintain the cool from within. I was very careful with the emotions of my children, which finally paid off. It not only made them relax but boosted my confidence as well. Being cheerful actually made the situation look less threatening. 

The panic and anxiety had stripped me of my hope, sanity, confidence and intelligence. Deep breathing, positive thoughts, being mindful and taking one day at a time was great booster to my strength to fight cancer. 

So, no matter what you are going through - just stay Calm. It too shall pass. 

B - Bald yet Brave and Bold.

 

I believed in the quote until cancer happened and I had to undergo Chemotherapy

Beauty is but skin deep - most of the people around think that way. Beauty is your outward appearance like your skin tone, weight, height, facial feature and off course the crowning glory hair. 

Women with bald heads do not fall under the norm because that fashion statement is often ignored. Chemotherapy is a must, and with chemotherapy most of the cancer patients lose their hair. When you are fighting for your life, hair is not a big deal but for those who are losing it (whether they complain or not) it means a lot. 

With breast cancer treatment, the first loss happened to me with the removal of breast. I felt less feminine without the breast. Later hair loss followed, making me look so different from my earlier appearance. I was losing my confidence at the speed at which DC was losing its fans after the release of Whedon’s Justice League . 

I decided to snap out of it and be bold and brave. I started carrying myself with confidence and stopped fearing to venture out. The first time I was forced out of my home when my younger sister sustained burns and had to be rushed to hospital. After that, I decided it is OK to go out. All I needed was that little push. I started wearing a wig at times. Everyone and everything around me changed once I became bold and  bravely stepped out of my comfort zone and cave. With or without hair, I realized I was the same person. I need not depend on those strands for my confidence. 

Being bold with the changes you feel in your body is very important. You need to be brave to face the criticism or looks people may throw towards you. Finally it is the strength within you to face the world which matters and not those strands on your head.

A - Awareness - Action - Attitude

 A - Z Challenge

Awareness is the key for surviving cancer and a lot more things in your life. It feels good to say, ‘Ignorance is Bliss’ but in reality it is not.  If you are looking for a treasure you should know what it looks like, right? Though I wouldn’t say the cancerous lump is a treasure, your life is and it depends on you finding it at the right time. 

Be aware of the symptoms of cancer and how to detect it in early stages. Do not ignore any changes you will see in your body. Most of the lumps and changes can be non-cancerous, knowing it for sure that it is benial helps a lot. 

Just being aware and finding out the problem is not enough. You have to jump into action and find ways to overcome cancer. I know that surgery, chemotherapy and radiation are not very tempting or inviting, but they are the necessities to fight cancer. So, do not hesitate to take action against your enemy. Kill it with a vengeance. 

My first thought and question to my doctor after knowing I had third stage cancer was, “What should I do to overcome this?”. He replied, “That attitude of yours is what will help you. Instead of worrying about cancer or its effects on you, your focus is on surviving and life”. 

Knowing you have cancer and getting treated is important, but so is doing with a great attitude towards life. 

If you ever have an encounter with cancer, do not panic.

Wear the smile, gear up the fight and focus on goals you want to achieve and fight it out tooth and nail to save that treasure called life. I am here after 25 years of fighting it, so can you.

2021 A to Z Challenge Theme Reveal

Blogging From A to Z - April Challenge 

 This is my first time participating in A to Z challenge. I came across this yesterday and realized I am a bit behind the schedule, but then decided to jump into it. Here I am. I had to think of a theme in a hurry.. when I realized I will be stepping into my 26th year of surviving 3rd stage breast cancer. 

I decided to talk about 26 things that has helped me battle and come victorious over cancer. So here I start with it and hope I will be able to complete this challenge and come victorious here as well. 

#25SilverLinings - Accusations Follow Cancer

A casual picture clicked to remember me before treatment began

When diagnosed, “Why me?” I had asked and looked around to find an answer. There was no one who could answer me. That was the good part. What was my mistake was that I  asked again and again out loud to people who were waiting with answers.  

Prompt came the answers, “It is your Karma coming back to you. You have been a bad person, and this is God’s way of teaching you to obey his way of life, and pray to him”. 

“You were so proud that God decided to teach you a lesson”

“Maybe you will finally learn to cover yourself well in Burkha. You will not want people to see you with one breast”. Ouch.. I was not ready to hear this. I was still wrapping my mind around this thought of being one breasted. 

“There must be something wrong with your family. First your dad, then your sister and now you, that means you people are cursed”. 

“It looks like your parents devotion to that guy ‘Sai Baba’ is what is causing cancer in your family. That vibhuti is burnt ash and may cause cancer”.

“Looks like cancer is contagious”

Those were not the answers I was expecting, but I deserved it for posing the question in front of people who were wearing those heavy blindfolds. I was also with a blindfold, looking blindly for love where it did not exist. 

My younger sister had asked me, “Don’t you feel insulted when they say God punished you with cancer?”

I laughed out loud at that question before answering her “You think I should feel insulted with that statement? I am worried about God and how he feels about it”. 

The girl was confused, “How so?” she asked. 

“Imagine a powerful being who says ‘obey everything I say blindly or else I will give you cancer’, what kind of an image you get of that being. Do you think of him/her as a protective creator? Do you feel this being is God? Doesn’t that sound like an insult to God rather than me?”

“Huh?” she was now lost in confusion or thoughts. My poor sister (and sometimes my brother) is confused with my thought process. It is Rayyan who understands me clearly or gives clarity where I have lost it. 

I stopped asking the question, because there was no right answer; or, if there was a right answer, it served no purpose at all. The fact was there in front of me, I had Grade III, Infiltrating Ductal Carcinoma, which meant I had to fight for my life or die suffering. 

Questions and right answers were for exams, where I had fared good. This was time for action and not inviting accusations by being vulnerable, weak, victim and sad. Neither the right nor the wrong answer to the question ‘Why Me?’ would change anything in the scenario. 

I really needed a shoulder to lean on for support at the time, but unfortunately either the shoulders were burdened themselves, occupied or unavailable. The two tiny shoulders of my children were not meant for support, so I decided to take it all on my own. 

Initially I wanted to discuss the course of treatment, choice of surgery, following treatment and other things with my husband, because I thought he was a part of this battle. But, within a week we had enough communication where accusations were thrown at me. Like any victim, I got the “You invited it” treatment. Though I felt sad and broken for a moment, I became stronger with every passing day. As they say, the scar tissue is always harder and stronger than the original skin. 

That monster cancer had timed its move well. It had found me when I was quite vulnerable. Cancer came into my life when I was nearing rock bottom of my life. It was those dark days when my sister made the decision to fight cancer the wrong way and was nearing the last stage of prognosis. I was struggling to find a proper diagnosis and mode of treatment for my daughter who had brain atrophy. My family was going through a financial crisis and there were a lot more of those hot spices added to this cauldron of my life. In this entire struggle when I was trying to balance myself like a rope walker that cancer made its appearance, shaking the rope I was walking on with rough jerks. Though my sister was diagnosed with breast cancer 2 years earlier, I did not expect myself to get it. No one expects to get cancer, no matter what is the risk factor involved in their genes, lifestyles or fate. In fact, since my sister and dad had already gone through cancer, we had decided that was the end of it. It cannot happen ever again, but in this case cancer had the last say. It had two more targets in view, me and much later my mom. 

If this was the situation any character from TV serial or Movie lands in, people pull out tissue papers and shed tears. But, in real life it is different. You are accused of being the sufferer, a person who is hounded by bad luck, you are making life miserable for others and you are the criminal. I wanted to live my life and prove to those people that I was not a criminal. I can not only smile through my tears, but wipe away tears from other people’s life as well. 

People talk a lot about how family support, love, and all other rainbow colored stuff helped them survive cancer, but honestly in my case it was the negativism from the nasty people that helped me fight hard. I had to show them that they were not right! It doesn’t matter anymore today, but back then it was a great motivator for me not to succumb to cancer. It is like what they say; when life throws lemons at you make lemonade. I had negativism thrown at me and I changed into a motivational factor. After all ‘shit’ is good manure. 

I decided on the date, the doctor, the hospital, and course of treatment - all on my own. I am glad I did that because I must have made all the right choices. I am still here breathing and typing this. At that time, the fierceness I felt within me must have already made cancer pee in its pants. Yes, I was going to win this, I had no other option. I was quite determined to live and prove myself if not to others, at least to myself.

The boy who stood with me

                                                  

The  girl who motivated me

The woman who was fighting it out

#25SilverLinings - Gearing Up For The Battle

 

Gearing Up For the Battle

When faced with cancer, I secretly started evaluating my life and my options. Yes, I had bravely told the doctor that I would fight for my life. I told my family that with treatment I will survive and be there for them, but then I had my moments of doubts as well which I did not reveal to anyone, at least not until now.. 

I started to retrospect my life. If I created a line chart of my life, the line would begin at the rock bottom for me. I was the second girl child born with a club foot to parents who were wishing for a boy. Not a happy event for people to rejoice. My early years were a great turmoil for my parents who wanted to correct my foot without opting for surgery. Happy time was to follow the initial days of gloom which began when I started school. The line went on climbing steeply with my achievements in studies, sports, and art, as I won accolades for my success in almost everything. My dad was very proud of me, and my mom was terrified that I may go crazy pursuing some unachievable target. 

I was a happy go lucky child who suddenly changed in the teen years. I entered a phase of my life where I wanted to make others happy and be a good person. I wanted to be appreciated by my parents/people around me so bad that I gave up my studies, married, and settled down into a life of pretentiousness. I did things I did not want to do, just so that my husband and other family members would be happy and appreciate me. I was not born to be a person I had become in the course of life. What went wrong? I have no clue.  I lived life as though I was surviving a huge storm to pass. I fell into a trance and dissociated with myself. 

Not until the words ‘You have Cancer’  clapped on my ears like a thunder, did that I wake up from the trance I had got myself into. I was standing here on the edge of the cliff, where down there I could fall to my death, or take courage, find a foothold on the slippery ground and steadily walk away into the life which lay ahead of me. This was life’s own test, for which fate had handed over the question paper to me. This was tougher than the board exams, where the answers were already in my head. Here I had to search and find the answers in my heart. I had to write answers to the questions which I had no clue about. 

At one time I started wondering-

What was the life I was fighting for? 

Why do I have to fight for the life where I was doing things that made me unhappy? 

If I would die of cancer, what would happen? 

Other than my children/parents/siblings, who would be affected for long? 

God has given me a beautiful life, but what have I done with it?

I was ashamed to answer those questions, because I had made a mess out of my life. Though a topper in school, I had given up my studies; I was living a conceited life without much care. Moreover, I was so sad most of the time. I was unhappy with my marriage where my husband was not there for a long period of time. Many people were living that way, but that was not the ideal relationship for me. My parents were going through a financial crisis, my sister was going through the last stages of cancer,  my daughter was supposed to not walk, talk, play or study like other children according to medical reports and don’t ask me what else, because the list would be unending. It would have been very easy for me to say, let cancer kill me and free me from all these turmoil.  But then I would just leave behind a mess and die if I did not fight now. A sense of remorse and despair swept over me. Though I do not highlight it very often, it was this mess that made me resolve not to succumb to cancer and die without achieving anything in life, or without doing things that ‘I’ really wanted to do. If everything around me was a fairytale setup, I may not have resolved to fight so hard.

After evaluating myself, I looked up to my children, a 5 year old extremely emotional boy and 11 month old girl with special needs. A vivid image of them as orphans floated in front of me, they were crying for me and asking where is our ‘Maa?’ I could not let this happen. 

Again another image of a bald woman with one breast floated in front of me. Will I ever be a desirable woman after going through the total mastectomy and chemotherapy? I was not sure. I am not sure what makes people so emotionally attached to a part of their body, which is not much useful other than being a sex object. Off course we breast feed our children, but after that the boobs are just sex objects, or maybe I am wrong. The thought of losing the breast and symmetry of my feminine body was very painful even after the internal debate that assured me that breasts are not important, so was the thought of going totally bald. 

As I sat there in remorse, my son walked up to me. He was feeling insecure, scared. He had heard the hush hush talk with my name. When you try to hide things from children it only makes them more scared, it is always better to state things as they are. His look changed me. Moreover there was my daughter who with her innocent smile motivated me to fight for my life. I wanted to live for her and be there for her. There was no way I was going to abandon my special needs child and surrender to cancer, leaving her behind to fight her battle with discriminating society all alone.

I had spoken to my children’s pediatrician Dr. Nandini Mundkur. She made it very clear to me not to confuse Rayyan but tell clearly that I am sick but assure him that I will get well. Hush hush talks will make it more scary for him. She had no doubt about it. 

Farheena could not talk much, but she had become cranky because I had abruptly stopped breast feeding her. She was usually a happy and content child, but now I could see her crying or being sleepless very often. 

 What had to be done couldn’t be ignored because of cancer. One of those things I had to focus on was Farheena’s therapy. When I was dressing up my 11 month old daughter after giving her a bath to take her to the therapy session, Rayyan walked up to us. He looked quite worried and sad. I asked him, “what happened beta?” He did not say anything for a while, but later asked me, “Maa, what has happened to you? Where are you going tomorrow?” It was a day before my final consultation with the doctor to fix a date for my surgery. It was already decided 28th April but he wanted to book the OT and fix the anesthesia appointment, so confirmation was needed from my side. My doctor had given me options of conservation of breast or to go for total removal of breast. I decided to go for total radical mastectomy and my family were very upset that I was not trying anything else before the final decision. 

With that question from my child, my heart landed in my tummy. Those words, that look and the sadness are still etched in my memory like most of the events relating to my cancer experience. He had heard everyone around him talking about my illness; he had seen me go for check-ups, having biopsy, discussing things with my family and had a lot of questions but he had no courage to ask. We elders had decided to protect him from the truth but made the matters worse for him since the unknown is always worse than the worst of the known.

Honestly, I believe moms are one of the strongest creatures in our world. I felt strong and protective at that moment for my son. In a minute I had overcome my shock and shot him one of the most genuine smiles I could bring up. I made him sit beside me and told him that he had to listen to me carefully and ask me to explain anything that he would not understand. I told him that one of my breasts had developed a lump which could be dangerous if left untreated. So instead of removing the lump, I had decided to remove the breast itself so that I can be safe. I was going to get operated on and the date would be finalized, after which I will take medicines that will help me become healthy once again. As I explained everything to Rayyan, I was worried about his response to this revelation. To my surprise he sighed in relief. He exclaimed, “Oh, that’s all? I thought you are going to leave us all forever or something like that”. I casually said, “I feel a bit sad that the doctor is going to remove one of my breasts”. Promptly he said, “It is not like losing a hand, leg or eyes Maa. What do we do with breasts anyway? Farheena can always drink milk from a bottle?”  Those words really lightened up the situation for me and I promised my son that I am going to kick cancer and be with him as long as he wants me. He made a tiny promise on that day that he would help me in everything I do as well. That tiny moment had filled me with a lot of power and strength to fight out anything that would snatch me away from my children. I became too greedy for life. The next day I clearly told my doctor to do whatever it takes to help me survive. I did not mind the quality of life, all I wanted was quantity, more days to be with my children. He looked sad when I said that and replied, “Do not compromise on quality of life. You have to lead a good life happily”. 

When I talk about silver linings, this is one of them. A child who decided to take care of his mom and stood by that promise to this day. His assurance and love shone a bright light from the edges of the dark clouds looming overhead. 

I was not in confusion anymore. My kids were going to have me in their life as long as they wanted me. I promised them, “I have cancer, but I will see to it that cancer will never have me”. With that spirit I kicked myself into fighting mode and started gearing up for the  battle ahead of me. I know, the results are not in our hands, but I was going to fight hard for even a few hours if I could add it to my life.

The child is quite a superhero in my life.... The good part is he knows what he means to his mom.

This girl fills me with great strength even to this day.

Looking at the world with wonder in her eyes... Not knowing how tough it can be on her.

That smile was worth walking through the fire....

#25SilverLinings - Problems, Solutions and Dilemma

After finding out what the biopsy reports said, I walked in and quietly went to take care of Farheena after coming back home. My sisters were both busy with the dressing my elder sister required for the wound the cancer had opened up on her chest. My brother was out. Mom and dad were taking care of the canteen and would come back home very late at night. It was by then that I had to be ready. There were questions I had to find answers to.

• Who should I share this information with and who I shouldn’t share it with?
• What will be my husband’s response to the news? He already seemed very upset when I went for my biopsy.
• What about my parents who were already struggling to cope with my sister’s diagnosis of breast cancer and its progression?
• Who will take care of Farheena and Rayyan when I go through my treatment?
• How will I manage my finances?
• What is the next immediate step?

I usually like to keep my life open, in front of everyone, because I know eventually the truth will be out. Cancer was not easy to hide because I had to go for treatment. Finally I decided to tell it out in open to my family and also call my husband and inform him of the diagnosis. He had left for Dubai when I was pregnant with Farheena. Farheena was 11 months and he hadn’t met her yet. He was already struggling to cope with her diagnosis and also his mom’s death which took place a few months earlier. Life was not easy for him either. Unfortunately everyone was having issues at the time and I could not turn to one person for support.

Everybody had to be onboard other than my children for the time being. Rayyan was just four and I needed a strategy to explain things to him. Farheena was just 11 months and would have no clue. Trying to hide things among people would lead to confusion and more fear which is born out of confusion and fear of the unknown. Anticipating the reaction was hard. I got different scenarios playing out in my mind.

Finally we got together when my children were asleep and I revealed to my parents and younger sister about my diagnosis. My elder sister was asleep as well and I decided to keep her out for time being. My brother already knew. The expected chaos did not take place. They were all very silent. Finally dad said, “there must be a mistake in that report. Since your family history has cancer, they have just assumed it is cancer”. Mom followed by saying, “How can God do this to us? You have two small kids. This cannot be happening”. They all went into denial. I couldn’t get there. For me, cancer was real but I did not think of it to be invincible. I was planning on slaying it rather than denying its existence.

I told them I will have a second opinion and check it out. They assured themselves that I will get to know the truth that it is not cancer and they pacified themselves. Hope can be a boon or a curse!

The next day I visited the hospital again to see the options I had. The BCH&RC had two oncologists residing in its premises because their spouses were working in the children’s hospital. One of them was doctor Murad Lala who I consulted for my options. I was familiar with him though we did not have much interaction earlier. He was a young and pleasant person with a great smile to greet people.

As he sat there reading my reports, I asked, “Sir, what should I do to survive this?”.

He looked quite happy with that question and paused with his reading. He looked at me with a smile and said, “I think you already have done it. You have shifted your focus from cancer to life. The will to live and thought that you can survive this is very crucial in overcoming your condition”.

He went on to say that usually people ask,

What will happen to us?

How long do we have?

Do I have to die?

etc but this was the first time he heard someone so determined and asking what to do to survive this.

We discussed a few more things about cancer and its treatment. I realized that operating on the breast was necessary followed by chemotherapy and radiotherapy. By now, I was familiar with it since dad had gone through the treatment. The doctor told me that he was working in Kidwai. I could get operated there.

I visited the hospital the same day and also another oncology specialized center considering where to undergo surgery. Kidwai Hospital was huge and confusing. There were patients everywhere and most of them did not seem to be doing well. I knew my children would want to visit me and also my parents when I would be undergoing treatment. This hospital would scare the shit out of them….

I discussed it with my daughter’s pediatrician. BCH was a new hospital and there was no rush there. The OT was free and it had enough facilities to conduct the surgery, but the staff were not trained to handle oncology cases. I had my trust in the doctor. He had openly mentioned that his field of expertise was head and neck cancer and also that I would be the first patient he is operating on independently.He also assured me that he would do his best. I decided the children’s hospital was the best option for me because we visited it regularly for Farheena’s therapy and check-ups. So nothing would be new or scary.

I fixed my surgery date to be on 28th of April and informed my husband about it. He had been in gulf for nearly 18 months. He said he will be coming back on 25th April and will be here for my surgery. My parents were not ready for this huge news of me going for the surgery, but they finally agreed. Somehow my elder sister got the news and was devastated. She was worried for my children as much as she was for me. I feel guilty that I caused her pain in the last few days of her life.

Once things were out in the open, days started moving fast. In all the chaos surrounding us, we completely forgot our little silent sufferer, Rayyan. He was confused and scared knowing that something was wrong but at the same not understanding what was happening around him, with his aunt and his mom. I decided to talk to his pediatrician, take her advice before talking to him. The biggest challenge was in front of me and I was scared to deal with this, but I had to. I geared myself up for this with a very heavy heart.